One down, one to go
Jackson's first surgery went OK. Not great, but it could have been worse, and he's recovered in true Jackson style. After the surgery he struggled with keeping his airway open and his oxygen levels up, and needed to get some oxygen support for about 24 hours after the procedure. This was not unexpected, but was still scary for me. There was a time during his immediate post-op recovery that I was actually propping his airway open with my hands (holding his chin forward so that his tongue didn't fall back and occlude his breathing) in order to avoid the need to re-intubate him. That only lasted a short while but it was too long for me! He also required continuous IV pain medication for the first 24 hours as well. Thankfully after a good, long nap on Saturday we were able to wean both the O2 and the IV meds down. Currently he's just on Tylenol with codeine for pain and it's keeping him comfortable.
I can already see the positive effects from having his tonsils/adenoids removed. He's breathing much clearer and easier now, and he's had less drooling and coughing/congestion as well. It was such a sudden decision to move forward with the T&A that I was nervous we were being too aggressive, but it looks like we did make the right decision after all. The team here at Duke always seems to steer us in the right direction.
One nice part to our stay at the hospital was that there was a room available on the transplant unit for us, so we were able to see some of the nurses that took care of Jackson during his transplant. Actually, Jackson's primary nurse from transplant was the same nurse assigned to him this weekend! It was nice to catch up with her and give her a chance to see how much Jackson has grown up. He was practically a baby when he went through transplant - he was only 19 months old at the time. I spoke to a few families in the unit going through transplant right now, and it was so wonderful to be able to tell them that we are nearly 4 years out and doing well. They need all the positive and hopeful stories they can get.
Next up is the placement of a new port and a tendon lengthening procedure on his hips. The tendon lengthening surgery will release some of the tightness in his hips and thighs, which will make it easier to position him and will hopefully help keep his hips from being dislocated in the future. It should be a relatively simple surgery that would typically be done as an outpatient, but Jackson may have to spend a night or two in the hospital to make sure he stay stable afterwards. I don't think we have too many appointments between now and the next surgery, which is a welcome break. I hope we'll be able to do some fun things with the kids over the next few days.
Thanks for checking in and for keeping Jackson in your prayers. Peace and blessings.
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